An unusual day...
Hello all, again! Update 5.5 (since it’s so close to the last one).
Thanks for all the Birthday wishes, I partied it up all weekend and had the best time. Friday night I discovered a new Karaoke place called “Wool Shed”. They have huge projectors, a stage and cordless mics so you can walk all over the bar and sing away! I really need to go to Japan, just for the Karaoke. And as I mentioned before I won 2 free Guinness for singing, who would have ever thought that karaoke would pay off?
I’ve got a lot of responses from people curious about my job. I’m teaching students with severe and profound special needs. They are all in wheel chairs, all have cerebral palsy and all have limited to no speech (only one student can say “hi ya” and “how are ya”). There is 1 girl aged 6 and 4 boys aged 9, 10, 11, and 13. My day consists of extreme routine, we go to assembly every morning for prayer and song and then we start out day in the classroom by using automated lifts with sacs to hoist the children from their home wheel chairs to their school wheel chairs (which have table tops to work on). We do our circle time and use pictures to show what the schedule for the day is. After circle time and an activity it’s time for drinks for each student. We have to use a special thickener and spoon feed the students (except the ones who are PEG fed, a tube directly to their stomachs) and then have a break time. After break it’s time for changes, which my SNA’s are responsible (changing their nappies, which we call diapers in Canada). While students are being changed it gives me a chance to work with a few one on one and continue with our school work. After that it’s time for lunch, which is provided by the school (it’s attached to the hospital), and consists of potatoe/meat/vegetable dishes mashed or pureed and we spoon feed the children. One of my students can feed him self, occasionally, and did so very well today! After lunch and another break our afternoon activities consist of the following – Monday is Library, Tuesday is Art, Wednesday is DVD day (we join another class to enjoy a children’s program), Thursday is Physical Education and Friday is our outing to the local shop. Then there’s the paperwork, IEP’s (Individual Education Plans), Monthly Plans and Reports, Daily communication books and Weekly Report books.
The types of activates we do are all sensory/hands-on type of activities such as Grasp and Release, working with large switches hooked up to battery operated stuffed animals, switches hooked up to the computer with specialized software, a “Talk 4” which is a specialized communication device (you have pictures on the front and when pressed the audio you’ve recorded to go with the pictures will play), a “Big Mac” which is a single switch that records audio and is used for communication and using a Picture Exchange Communication, where you trade pictures for objects. We also try to get the kids out of their chairs during P.E. and do Physio activities, play games or just chill out to some nice music. The automated lifts are there so people don’t throw their backs out, but it’s so time consuming that sometimes you have to manually handle the students. And I have no problem lifting the students myself, we did a game in the gym where I picked up some of them and ran a little circle around the others (they loved it!).
In between our regular schedule there are constant interruptions from Nurses, Physiotherapists, Occupational Therapists, Speech and Language Pathologists and Dietitians. I have to work closely with all these people and keep in contact for the needs of my students (that is of course where the Asthma Camp experience is paying off, I worked with medical staff there as well). We sometimes try to find time to go to the local tea house called the Beehive for tea, toast and scones and Thursday we are going on a special class trip to the Mall to see Santa.
By far the best part of the day is when you get a reaction from the children like completing a task, a simple smile, a look in their eyes that shows that they’re getting something or an out loud laugh. One of my students will squeeze my fingers when she enjoys something.
As I celebrated my birthday this weekend one of my student’s families had to deal with the loss of their child. Adam was 9 years old and had to have a nurse with him at all times, he would laugh and giggle when he liked something but was very fragile and couldn’t be moved very much because of his brittle bones. It was a miracle that he lived as long as he did (the doctors didn’t expect him to) and this was due to the determination of his mother who made sure that he had a nurse with him all the time. He had been in the hospital for the past 2 weeks and was very ill. He passed away this morning and it was absolutely one of the hardest things I’ve ever had to deal with in my teaching career. The rest of the students could sense that we were emotional and I showed Adam’s picture, explained what happened and told them that he was in Heaven now. I’m not sure they really understood exactly what I was saying, but I think they understood more the emotions we were exuding at the time we found out this morning.
I feel very lucky to have been able to work with Adam, I feel as though he taught me more than I could ever have taught him. I’m also really happy with my decision to stay on with the school because if I were leaving at Christmas it would be hard for the students to have to deal both with the loss of a classmate and having a new teacher take over.
A small glimpse into my job here and one my most unusual days.
Take care everyone,
Stephen
